Fillable Taking Care Of Your Multiple Sclerosis (Superior HealthPlan)

Fill Online, Printable, Fillable, Blank Taking Care Of Your Multiple Sclerosis (Superior HealthPlan) Form

Use Fill to complete blank online SUPERIOR HEALTHPLAN pdf forms for free. Once completed you can sign your fillable form or send for signing. All forms are printable and downloadable.

Taking Care Of Your Multiple Sclerosis (Superior HealthPlan)

On average this form takes 90 minutes to complete

The Taking Care Of Your Multiple Sclerosis (Superior HealthPlan) form is 80 pages long and contains:

  • 0 signatures
  • 18 check-boxes
  • 350 other fields

Country of origin: US
File type: PDF

Use our library of forms to quickly fill and sign your Superior HealthPlan forms online.

BROWSE SUPERIOR HEALTHPLAN FORMS

Related forms
Fill has a huge library of thousands of forms all set up to be filled in easily and signed.
Fill in your chosen form
Sign the form using our drawing tool
Send to someone else to fill in and sign.
find another form
 
MS
TAKING
CARE
of your
MS
A POCKET GUIDE FOR
LIVING BETTER WITH
MULTIPLE SCLEROSIS
TAKING CARE OF YOUR MS
Use this guide
for info on caring for multiple
sclerosis, to organize your data
and as a quick resource.
TABLE of CONTENTS
MY CONTACTS
1
MS DEFINITIONS
AND DIAGNOSIS
3
MY MS HEALTH CARE TEAM
9
MS MYTHBUSTING
13
MY TREATMENT PLAN
15
DAILY MEDICINE SCHEDULE
17
MS AND FITNESS
19
MS AND NUTRITION
22
VITAMINS, HERBS
AND SUPPLEMENTS
27
ADAPTING TO MS
29
STAYING MOBILE WITH MS
33
WALKING WITH MS
35
WORKING WITH MS
36
MS AND PREGNANCY
38
DEPRESSION AND MS
39
CELEBRITIES WITH MS
42
THE FUTURE OF MS
43
QUESTIONS
44
NOTES
46
RESOURCES
DISCLAIMER. This book provides general information about multiple
sclerosis and related issues. The information does not constitute medical
advice and is not intended to be used for the diagnosis or treatment of
a health problem or as a substitute for consulting with a licensed health
professional. Consult with a qualified physician or health care practitioner
to discuss specific individual issues or health needs and to professionally
address personal medical concerns.
MY CONTACTS
MY CONTACTS
MY CONTACTS
Emergency Contacts
Emergency response: 911
Name:
Relationship:
Cell Phone:
Home Phone:
( )
( )
Name:
Relationship:
Cell Phone:
Home Phone:
( )
( )
Medical
My General or Family Doctor:
( )
Phone:
Other Specialist:
( )
Phone:
Hospital:
( )
Phone:
Health Insurance Providers:
( )
Phone:
Website:
Local Pharmacy:
Mail-order Pharmacy:
Specialty Pharmacy:
Case Manager:
( )
Phone:
1
MY CONTACTS
MY CONTACTS
MY CONTACTS
2
Other Professional Contacts
Name:
Service/Function:
Phone:
( )
Name:
Service/Function:
Phone:
( )
Name:
Service/Function:
Phone:
( )
Family Members
Name:
Phone:
( )
Name:
Phone:
( )
Name:
Phone:
( )
Name:
Phone:
( )
3
MS DEFINITIONS
AND DIAGNOSIS
WHAT IS MULTIPLE
SCLEROSIS (MS)?
MS is a chronic disease that
harms the coating of the nerves
in the brain, spinal cord and
nerves to the eyes (optic nerves).
MS
DEFINED
Sclerosis:
means scar tissue that
can occur in areas of old
damage from MS.
With MS, t
he body’s own
immune system attacks the
tissue around the nerve fibers.
These fibers are in the brain,
spinal cord and optic nerves.
MS
DEFINED
Myelin:
a fatty substance that
covers the nerve fibers
and helps conduct
nerve impulses.
Myelin wraps the nerves and helps them send electrical signals
that control movement, speech and other functions. Scar tissue
forms when myelin is destroyed. Nerve messages can’t be
transmitted in the right way. So people with MS develop multiple
areas of scar tissue due to this nerve damage. Depending on
where the damage is, symptoms may include problems with
muscle control, balance, vision or speech.
4
THE CAUSES OF MS
While medical science keeps
studying MS and finding new
treatment options, no one
really knows the causes of
the disease. It may be linked
to a vitamin D deficiency.
Genetics can play a role, but
most people with MS don’t
have a family history. The
risk of passing MS on to a
daughter is about five percent
and one to three percent to a
son. Smoking, low Vitamin
D levels, childhood obesity
and exposure to the Epstein-
Barr virus are causes.
WHO GETS MS?
Women are much more likely
to get MS than men. It can
strike people of any race, but
whites are most at risk. Those
between the ages of 20 and
50 have the highest chances
of developing the condition.
MS SIGNS AND SYMPTOMS
Nerve damage
The toll MS takes on the nerves can be severe. Nerve damage
brought on by MS can cause:
Numbness
Loss of strength in the
arms and legs
Loss of balance
Muscle spasms
These conditions can lead to
tripping, a loss of coordination
and trouble with walking.
5
MS
DEFINED
Optic neuritis
(
noo-ri-dus
):
inflammation of the optic
nerve that may cause eye
pain, blurred vision, loss of
color and blindness.
Vision problems
Optic neuritis is often the
first sign of MS. Worsening
vision over several days with
pain from eye movements
is typical. Double vision
and shaky vision are other
visual MS symptoms.
Speech problems
Not as common as vision,
speech problems can cause
some people with MS to
slur when they talk. MS
can harm the nerves that
carry speech signals from
the brain to the tongue
and mouth. Uncommonly,
people with MS may have
swallowing problems.
THINKING problems
About half of people living
with MS have short-term
memory problems. Completing
multiple tasks at the same
time becomes harder.
Fatigue
Feeling overly tired
is a common problem
for those with MS.
Even after a good
night of sleep, you
may wake feeling
worn-out, sleepy and
fatigued.
Bladder
control
Some people with MS have to
urgently urinate, have bladder
accidents or have trouble
emptying their bladder.
Other common MS symptoms: Depression, spasticity,
bowel problems, dizziness, emotional changes, sexual
problems, pain and walking problems.
6
MS DEFINED
Spasticity:
feelings of stiffness, tightening, cramping and muscle
spasms, especially in the legs.
HOW IS MS DIAGNOSED?
Doctors listen to your symptoms, do a neurological exam and
perform tests, including an MRI scan to diagnose MS. Other
tests that might be done are checking spinal fluid for specific
immune proteins and a visual electrical test. Blood tests will
likely be done to check for other diseases that might mimic MS.
MS is different in each person, but doctors have identified these
four forms:
Relapsing-remitting:
New or old symptom(s) flare during attacks or
“exacerbations.” Attacks (relapses) last more
than one day. The new symptoms can go away
completely (remit) or leave behind permanent
problems. Eighty-five percent of people start
with relapsing-remitting MS.
Primary-progressive:
MS slowly but steadily gets worse. No relapses
occur. This applies to 10 to 15 percent of MS patients.
Secondary-progressive:
Begins as relapsing-remitting type before becoming
progressive. The vast majority of patients without
treatment develop secondary-progressive MS.
Progressive-relapsing:
The underlying disease gets steadily worse.
The patient has relapses which may or may not
remit. This is the least common form of MS.
FIND OUT MORE
MS LivingWell:
Diagnosing Multiple Sclerosis:
mslivingwell.org/learn-more-about-ms/diagnosing-
multiple-sclerosis/
7
THE MRI
MS
DEFINED
Magnetic resonance
imaging (MRI):
a medical test that helps
doctors diagnose and treat
medical disorders. MRI uses
a powerful magnetic field,
radio frequency pulses
and a computer to create
detailed pictures of organs,
soft tissues, bone and other
internal body structures.
Use of MRI has greatly changed
the ability to diagnose MS.
These days, MRIs can detect
changes in the brain and
spinal cord caused by disease
that may not even be causing
symptoms.
MRI BASICS
An MRI test creates clear
pictures of the body. Instead
of using X-rays, an MRI uses
a large magnet, radio waves
and a computer to create the
images. Many times an MRI can locate damaged parts of the brain
and spinal cord that couldn’t be detected by X-ray or CT scan.
MRI exams a
re safe. They pose
no risk to the average person as
long as regular safety guidelines
are followed. Most exams take
about 45-90 minutes, and each
exam can yield dozens of images.
MS OR STROKE?
MS shares a few of the same signs as a stroke: confusion, muscle
weakness and slurred speech. Take anyone having trouble
speaking or moving his or her arms or legs to the hospital right
away. Getting treatment within the first few hours of a stroke
offers the best chances for a full recovery.
8
WHAT AN MRI CAN DO FOR YOU
1. Detect MS
An MRI is the best test to help diagnose MS. Almost all people
with MS have abnormalities found through an MRI scan.
2. track the progress of MS
MRI scans are used to monitor MS disease activity and
response to treatment.
THE MRI PROCESS
You’ll be asked to leave your watch and jewelry at home.
Wallets and purses should be placed in a locker at the
facility. The magnetic strips on bank cards can be erased
in the MRI machine.
You’ll most likely put on a hospital gown.
Certain MRI exams call for a contrast material to be
injected first. This allows the scan to see areas of concern
within body parts.
During the scan you’ll hear equipment noises. These muffled
bumps, bangs and thumps will last for a few minutes each
time. You won’t feel any sensations during the scan.
After the exam, the doctor will talk to you about the results
of the scan. Most MRI centers will give you a copy of the
scan that you can take to your regular doctor.
In most cases you’ll be able to go on with your usual
activities right away.
Let your regular doctor know that you’ve had the MRI exam.
He or she will reach out to the MRI center to get the report.
NOTE: If you are claustrophobic, contact your health care
provider for options, including medications to help relax you.
FIND OUT MORE
National MS Society:
Magnetic Resonance Imaging (MRI):
nationalmssociety.org/Symptoms-Diagnosis/
Diagnosing-Tools/MRI
9
MY MS
HEALTH CARE TEAM
Managing multiple sclerosis really starts with building your
health care support team. Here are some of the people you’ll
need on your squad in dealing with the disease.
NEUROLOGIST
This specialist treats diseases of the nervous system involving
the brain and spinal cord. MS is a progressive disease, and new
treatment advances happen all the time, so seeing this point
person for your symptoms is critical in managing MS.
My neurologist:
Contact info:
TIP: Be better prepared for your neurologist visits. Write out
your top three concerns to be addressed, current medication
list and MRI CD if the doctor needs it. Have these items ready
for your appointment.
NURSE
The nurse holds your MS care team together. She will teach you
and your family about MS and works to support your whole
treatment plan. Your nurse will help with your overall wellness
and introduce you to the programs and services you’ll need.
My nurse:
Contact info:
PHYSIATRIST
A physiatrist is a physician skilled in medications and rehab. He/
she leads the rehab team and creates a treatment plan that will
help you function best with the MS limits you may have. Your
physiatrist can prescribe exercise, medications and the assistive
devices you may need to pursue the highest quality of life.
My physiatrist:
Contact info:
PHYSICAL THERAPIST (PT)
Working to improve and enhance your mobility and everyday
activities, the PT designs a treatment plan for you. With the goal
of a better functioning you, your PT will consider your limits and
abilities, your home and workplace areas and your support team.
He or she will then create an exercise plan that improves your
strength and balance, and teaches you about mobility devices and
managing fatigue.
My physical therapist:
Contact info:
OCCUPATIONAL THERAPIST (OT)
Keeping you productive, safe and independent at home and work,
the OT uses upper body exercises, special equipment and changes
to your work space. Your OT will show you how to save energy,
function well and improve your quality of life.
My occupational therapist:
Contact info:
10
SPEECH/LANGUAGE PATHOLOGIST (S/LP)
The speech/language pathologist evaluates and treats speech
problems. He or she may also work with a nutritionist to help
patients deal with swallowing issues and safe, healthy eating.
My speech/language pathologist:
Contact info:
PSYCHOLOGIST
Teaching MS patients about the disease and how to adapt to it
in their lives is the main job of the psychologist. You can share
your feelings and concerns freely in the privacy of your therapist’s
office. You’ll learn coping skills, how to deal with anxiety, how to
make decisions about your treatment and more. Your psychologist
will assess and treat mood changes and depression.
My psychologist:
Contact info:
NEUROPSYCHOLOGIST
The neuropsychologist treats problems with memory, attention
and problem-solving. He or she uses tests to determine your
abilities and limits, and creates plans to help you achieve activities
at home and at work.
My neuropsychologist:
Contact info:
11
SOCIAL WORKER
Your social worker will help you and your family members get
in touch with community resources. These may involve getting
a job, adapting your home, applying for disability, finding long-
term care or other needed services.
My social worker:
Contact info:
NUTRITIONIST/DIETICIAN
This specialist gives you info on the role of diet in managing your
MS symptoms. He or she will guide you through how to plan and
make healthy meals, how different foods can help with symptoms
and how to manage your weight.
My nutritionist:
Contact info:
PRIMARY CARE PHYSICIAN
While specialists focus on your MS, your primary care physician
monitors your overall health and wellness. He or she will monitor
you for high blood pressure and diabetes, which can be overlooked
when focusing on MS symptoms, and helps coordinate the work
of all of your specialists.
My primary care physician:
Contact info:
12
MS MYTHBUSTING
MS MYTHBUSTING
MS MYTH BUSTED!
MS is a
death sentence.
Not true. The average life expectancy with MS is
within five to 10 years of the average lifespan of
everyone else. Only a small percentage of people
with very severe MS can die from complications
at a younger age. Depression needs to be
addressed to prevent suicide.
MS is curable.
While there is no cure for MS yet, early and
consistent treatment can minimize disability of
the course of someone’s life. Experts hope a
true cure for MS may one day be a reality.
Having MS
means you’ll
be bound to a
wheelchair.
Most people with MS don’t need a wheelchair
to move about. However, your care team may
suggest therapy programs and find devices to
help you do daily activities and increase mobility
to prevent the need for a wheelchair.
MS is the same
for all people.
No two cases of MS are ever the same. It’s hard
to predict what effect it’ll have on a person.
Different people may have different symptoms.
The course MS takes is hard to predict.
The risk for MS
is all in your
genes.
MS is an autoimmune disease, so genes can
play a role. But they don’t tell the whole story. A
detailed family history may reveal another person
in the family with MS or other autoimmune
diseases such as rheumatoid arthritis, lupus or
thyroid disease. However, most people with MS
have no family history of MS.
Only old
people get MS.
Wrong. MS is not an aging disease. MS is most
often diagnosed between 20 and 50 years old.
Young children, teens and the elderly can all
develop MS.
13
MS MYTH BUSTED!
People with MS
can’t work.
Most people when newly diagnosed can
continue to work. Even when mobility
changes, providers and health plans can help
access devices and even programs as needs
for support change. Sometimes workplace
accommodations and FMLA laws can help
people stay employed despite disability and
infrequent relapses.
People with
MS should not
exercise.
This is an outdated thought. With MS, the
benefits of exercise are far greater than the risks.
Research found that aerobic exercise helped with
MS symptoms. Bladder and bowel function,
fatigue and depression seem to get better with a
fitness plan. But there are precautions. See the
pages later in this book on MS and fitness.
Women with
MS can’t get
pregnant.
During pregnancy MS relapses actually
decrease during the third trimester, but relapses
can increase after delivering. Timing the
stopping of medication prior to conceiving and
restarting after delivery should be carefully
planned with your doctor.
MS is on the rise.
Research hasn’t really proved this to be true or
false.
14
DISPROVED!
At one time people believed these to
be causes of MS. They aren’t.
Being exposed to heavy metals
Having physical trauma
The artificial sweetener aspar
tame
FIND OUT MORE
Everyday HEALTH®:
7 Myths About Multiple Sclerosis:
everydayhealth.com/hs/ms-management-guide/myths-ms/
15
MY TREATMENT
PLAN
MY TREATMENT
PLAN
Keep in mind that there is no cure for MS. When it comes to treating
the disease, you have various approaches you can take. When used
together, they can be effective in dealing with the symptoms that
get in the way of daily life.
Medications
Disease-modifying therapies (DMTs) have been proven to lower
the number and severity of MS attacks. In addition, most of these
medications reduce the chance of having worsening disability. Most of
the medications can prevent the majority of new activity in the brain,
seen on MRI scans. These drugs work in very different ways but with the
same goal of blocking the immune system from attacking the protective
coating (myelin) around the nerves.
High-dose steroids in the vein or orally can treat a new relapse. Other
medications can help directly with symptoms, including bladder
problems, fatigue and muscle spasms.
For the best results, stay on a long-term DMT treatment plan. Talk
to your health care team about ways to improve your adherence to
DMT meds.
Pain Management
Pins and needles sensations, burning and tingling are common MS
symptoms. Some people get electric shooting pain in the face called
trigeminal neuralgia. Certain medications can help with these types of
nerve pain. Muscle relaxants, massage and physical therapy are good for
muscle cramping and tightness. If you’re one of the people with MS pain,
talk to your doctor about the options for relief.
Physical Therapy
Physical therapy can help make your muscles stronger, fight off stiffness
and get you from place to place more easily. If MS is affecting your
balance, coordination or muscle strength, PT can help you learn to rely
on other body parts and methods.
Occupational Therapy
Occupational therapy can help you keep coordination in
your hands for dressing, writing, eating and working.
Speech Therapy
If speaking or swallowing has become a problem due to MS,
a speech therapist can help you get these functions back.
Complementary Therapies
There are many therapies people have used to relieve MS
symptoms. Though nontraditional forms like acupuncture and
others have not been well studied and may not be recommended
by your doctor, some people with MS rely on them to help relieve
pain and muscle spasms. Always let your doctor know about any
special diets, supplements or other therapies you want to try.
16
Creating a treatment plan that works best for you calls for
a close partnership with your medical team. They will weigh
many factors to evaluate treatment options.
MS BY THE NUMBERS
MS BY THE NUMBERS
400,000
400,000
Number of people with MS in the United States.
200+
200+
People diagnosed with MS each
week in the United States.
FIND OUT MORE
Healthline:
Multiple Sclerosis (MS) Treatments
healthline.com/health/multiple-sclerosis/treatment
DAILY MEDICINE
SCHEDULE
Use this page to keep track of your medicines and when
you take them. Enter the name of the medicine in the first
column and the day and time you take them. Keep this chart
with you when you travel and go to doctor appointments.
MEDICINE
DAY/
DATE
TIME
T
AKEN
TIME
TAKEN
TIME
TAKEN
17
DAILY MEDICINE
SCHEDULE
MEDICINE
DAY/
DATE
TIME
TAKEN
TIME
TAKEN
TIME
TAKEN
18
19
MS AND FITNESS
MS AND FITNESS
MS AND FITNESS
Exercise can help build strength, improve balance and even reduce MS
fatigue. But overdoing it can make your symptoms worse for a day
or two. Check with your doctor before starting an exercise program.
Discuss what activities and level of intensity would be best for you.
Always check with your doctor
before starting any exercise program.
Because the type of exercise that works best for you depends
on your symptoms, fitness level and overall health, it’s always
best to talk to a doctor for help with your fitness plan.
Your doctor can recommend:
The types of exercise best for you
Which exercises you shouldn’t try
How hard you should work out
How long your workout should be and any limits
Referrals to other professionals, such as a
physical therapist, who can help create a personal
exercise program that meets your needs
GOOD EXERCISES FOR MS
SWIMMING WATER AEROBICS
YOGA RECUMBENT BIKE
20
TIPS FOR EXERCISING SAFELY WITH MS
Always warm up before starting your exercise routine.
Always cool down at the end.
Start slowly. Start with 10-minute fitness sessions and
work your way up to 30 minutes.
Always work out in a safe, well-lit place, free of slick
surfaces and tripping hazards.
Exercise while holding on to a grip bar if you have
trouble with balance.
Stop right away if you start to feel sick or if you hurt.
Stick with activities you enjoy and that you find fun.
Stay cool. Stay hydrated.
Try to exercise at the same time every day.
Know when to stop.
DON’T GET OVERHEATED
Exercise can cause your body heat to rise. For those with MS who are
sensitive to the heat, this can mean MS symptoms may reappear or become
worse. Mild tingling that only happens with exercise may not be harmful,
but always discuss these exercise-induced symptoms with your doctors.
Follow these tips to keep cool while exercising:
Don't work out during the hottest time of the day (10 a.m.
to 2 p.m.). If exercising outside, try to limit it to mornings
and evenings when temps aren’t as high.
Drink lots of cool fluids.
Listen to your body. If you notice any symptoms that you
didn't have before you started exercising, slow down or
stop and cool down.
Try swimming and water aerobics as good ways to stay
cool while you exercise.
MS AND WEATHER
Research has shown that MS may become more active during the
summer. Heat and high humidity may make symptoms worse.
Very cold temperatures and sudden changes in temperature may
trigger flare-ups as well.
Cooling vests can be a great option.
MY EXERCISE CHART
MY EXERCISE CHART
Use this chart to keep on track
with your exercise routine.
Date Exercise
Repetitions/
Time Spent
Finished
21
FIND OUT MORE
National Multiple Sclerosis Society:
Exercise:
nationalmssociety.org/Living-Well-With-MS/
Health-Wellness/Exercise
22
MS AND NUTRITION
EAT RIGHT, FEEL RIGHT
It’s important for all people to eat healthy. But if you’ve got MS, it
becomes a top priority. Eating nutritious food helps you feel well
and manage MS symptoms. With MS, the immune system attacks
the central nervous system. It can block or interrupt nerve signals
and cause fatigue, numbness, movement problems, bladder and
bowel dysfunction, and vision problems. A vital tool in living with
these symptoms is your diet.
Getting good nutrition and the
right amount of calories helps:
Maintain your body’s supply of protein
Give you energy
Heal your wounds
Fight infection
THE BAD NEWS:
There is no cure for MS.
THE GOOD NEWS:
Numerous treatments are available.
The leading causes of death in people with MS are heart disease
and cancer, the same as in the general population.
23
NUTRITIONAL GUIDELINES
FOR PEOPLE WITH MS
Eat a variety of foods from each food group.
Stay at a healthy weight through a proper balance of
exercise and food.
Choose foods low in saturated fat and cholesterol,
unless otherwise told by your health care provider.
Limit how much sugar and salt you eat.
Limit alcohol to one or two servings a day. Talk to your
doctor about a safe amount for you.
Drink eight 8-ounce glasses of water per day.
Limit the amount of caffeine you have.
24
EAT RIGHT, FEEL RIGHT
There is no single diet that can treat or cure MS. Medical experts
who study the disease advise the same low-fat, high-fiber diet
recommended by the American Cancer Society and American
Heart Association. Those basic guidelines can benefit people
with MS. Keep these recommendations in mind, too:
SAY NO TO A FULL-FAT DIET
Choosing low-fat milk, cheese, yogurt and other dairy products is
another method that can make your overall health better.
CHOOSE DIET SODA OVER SUGAR SODAS
While alcohol, coffee and soda can increase bladder urgency, the
caffeine in diet sodas can help with fatigue, so it’s something of
a trade-off.
CHOOSE FRUIT OVER REFINED SUGAR
It’s not known if refined sugars are linked to MS flare-ups. But
cutting way down on sweet foods is good for managing weight,
an important part of controlling MS. Extra weight can bring on
MS-related fatigue. Reach for the fruit for dessert instead of cake.
Fruits high in fiber help ease constipation and other MS symptoms.
EAT RIGHT, LIVE LONG
Having MS doesn’t mean you’re sentenced to a rigidly restrictive
diet. Just keep in mind that eating low-fat, high-fiber foods gives
you energy and guards against many other health problems.
25
ASK A NUTRITIONIST
Your health plan may afford you the chance to talk to a nutritionist.
Ask your doctor to refer you to a nutritionist to discuss your MS
and prepare a list of questions.
QUESTIONS FOR THE NUTRITIONIST:
FIND OUT MORE
WebMD:
MS and Your Diet: Is There a Link?:
webmd.com/multiple-sclerosis/features/ms-and-diet
Multiple Sclerosis Society:
Diet & Nutrition:
nationalmssociety.org/Living-Well-with-MS
DAIRY
26
MY HEALTHY
SHOPPING LIST
MY HEALTHY
SHOPPING LIST
GRAINS
GRAINS
VEGGIES
VEGGIES
FRUITS
FRUITS
DAIRY
PROTEIN
PROTEIN
27
VITAMINS, HERBS AND
SUPPLEMENTS
VITAMINS, HERBS AND
SUPPLEMENTS
Many people with MS find that adding supplements to their regular
treatments is good for their symptoms. A healthy, well-balanced
diet with lots of fresh fruits and vegetables is a must. They give
you a healthy dose of the vitamins and minerals you need. But if
you’re not getting that needed nutrition in your diet, you may want
to try these supplements. Talk to your doctor about which ones are
best for you.
SUPPLEMENT WHAT IT DOES
Vitamin
D
Could slow the progress of MS.
Low vitamin D levels increase the risk of
developing MS. The vast majority of people
with MS in the United States are deficient
in Vitamin D. People with MS with lower
levels of Vitamin D have been associated
with more MS attacks, more MRI activity
and more disability.
Yo u r doctor may want to check your blood
level of Vitamin D to determine the correct
amount to supplement. Many people with
MS require 5000 IU of Vitamin D3 to
get adequate blood levels. Foods high in
Vitamin D include fatty fish such as salmon
and fortified milk and orange juice.
Vitamin
B12
Vitamin B12 does not lessen MS symptoms.
B12 deficiency can mimic MS due to symptoms
of fatigue, tingling and memory loss.
Fish
oil
May serve as an
anti-inflammatory for MS.
While it’s not known if fish oil really works
for MS, these fatty acids are known to fight
inflammation. MS is a disease of inflammation.
It’s best to eat fatty fish often, but if you can’t,
fish oil is available in capsules.
28
SUPPLEMENT WHAT IT DOES
Vitamins
A, C
and E
Unproven MS benefits.
Antioxidant vitamins like A, C and E can help
fight damage caused by oxidants. No studies
show that those with MS benefit from taking
antioxidant supplements. Eat at least two to four
servings of colorful fruits and vegetables every
day to get the antioxidants you need naturally.
Calcium
Can build strong bones.
Calcium and Vitamin D help build strong
bones. Many people with MS are at risk for
osteoporosis, a bone-thinning disease. You
can get calcium from dairy products, eggs and
green leafy vegetables. If you take a calcium
supplement, don’t do more than 2,000 mg a day
if you’re over 50. If you’re between ages 19 and
50, 2,500 mg is the max.
More on Vitamin D
Researchers are starting to find out the role Vitamin D plays in
immunity for the nervous system. Studies have shown that those
with higher Vitamin D levels are less likely to develop MS. Higher
levels may also lead to reduced MS activity, slower rate of progress
and a lower degree of disability.
Sunlight is a major source of Vitamin D. Research shows that
people who get more exposure to the sun early and throughout life
have lower chances of developing MS.
FIND OUT MORE
MultipleSclerosis.net:
Vitamins, minerals, and supplements
multiplesclerosis.net/natural-remedies/
vitamins-supplements/
Vitamin D Council:
Vitamin D and Multiple Sclerosis:
Vitamindcouncil.org
29
ADAPTING TO MS
These functional changes around the home can help you manage
daily activities on your own.
Install grab bars inside and outside of the
shower or tub.
Use a nonslip mat in the tub and other slick surfaces.
Add a raised seat and safety rails to the toilet.
Lower kitchen counters so you can prepare
meals while in a seated position.
Get rid of any throw rugs. They’re a tripping hazard.
Add a shower chair to the shower.
MODIFY YOUR MOTIONS
Daily chores and leisure activities can cause you to become tired
very quickly if you’re dealing with MS. The disease can make
simple movements difficult. Use these tips to change how you
do everyday activities and you’ll find some relief.
30
WHILE DRESSING:
Sit in a chair with arm rests while you get dressed. This will
help you keep your balance.
When putting on pants, roll from side to side to get them
up over your hips. Do this while seated in a chair or lying
on the bed.
Wear loose-fitting clothes that have elastic waistbands.
In cold weather, wear wrap-around clothes instead of pullover
ones. Clothing that opens in the front instead of the back will
be easier to put on and take off.
Wear clothing with large, flat buttons or use Velcro closures.
Use a buttonhook to button clothing.
Use a zipper pull or tie a loop to the end of the zipper to zip
pants or jackets.
WHILE BATHING:
Use grab bars to get in and out of the bathtub or shower.
Use a bathtub bench or a shower chair with back support.
Put longer lever handles on faucets to make them simpler to turn.
Use a handheld hose for showering and bathing.
Wash yourself with a scrubbing brush or a sponge with a long
handle.
Instead of bar soap, try using soap-on-a-rope, or bath mitts or
sponges with soap inside.
Because really hot water can cause fatigue and worsen MS
symptoms, use lukewarm water.
Sew straps on towels to make them simpler to hold while drying.
Place a towel on the floor outside the tub to dry your feet so
you don’t slip.
Put a towel on the back of your chair and rub your back on it to
dry. Use a terry cloth robe instead of a towel to dry off.
WHEN USING THE TOILET:
Use a raised toilet seat and/or safety rails to help with
standing and sitting.
Never use towel racks or bathroom tissue holders to help
you stand.
Use extended faucet handles so they’re simpler to turn.
WHEN EATING AND DRINKING:
Rest your elbows on the table to give more motion at your
wrists and hands.
Sit with your knees and hips bent at a 90-degree angle in a
straight-back chair.
Use utensils with built-up, lightweight handles or a “spork”—a
spoon and fork in one.
Use a nonskid mat to steady items on the table.
Use a plate guard or plate with a raised lip so food doesn’t spill.
Use a long straw with a spill-proof cup or a plastic mug with a
large handle.
WHEN WORKING IN THE KITCHEN:
Use a jar opener for tightly sealed containers.
Keep jar lids or containers closed loosely so you can open them.
Use an extended lever to help you with lift-tab cans.
Use pans with a wide base that aren’t easy to knock over.
Use a food processor to cut and peel veggies.
Use plastic containers that won’t break.
Store food in small, easy-to-open containers.
Place utensils, pots, pans and measuring cups on a pegboard or
in a cabinet that’s easy to reach and doesn’t call for bending. Sit
when getting things out of lower cabinets.
Use both hands to pour liquids.
Use scissors to open cellophane packages.
Use a box top opener to open boxes.
31
32
WHILE DRESSING:
WHEN CLEANING:
Use mops, brushes, dustpans, brooms and window washers
with long handles to help you reach without bending.
Sit to fold laundry, wash dishes, iron clothes, vacuum or mop.
Adjust counters so you can reach them from a seated position.
WHEN SHOPPING:
Call ahead to make sure the store has what you need.
Call ahead to reserve a wheelchair or electric cart if you’re
not bringing your own.
Ask a friend or family member to drive you or call a taxi.
MS BY THE NUMBERS
MS BY THE NUMBERS
At least 2 to 1
At least 2 to 1
The ratio of women with MS to men.
FIND OUT MORE
Everyday Health:
Adapting Your Home for Multiple Sclerosis:
everydayhealth.com/health-report/multiple-sclerosis-
pictures/adapting-your-home.aspx#/slide-1
STAYING MOBILE WITH MSSTAYING MOBILE WITH MS
STAYING MOBILE WITH MS
Most people with MS can still keep moving. Many
can be helped by the use of an assistive device. These
mobility aids can make daily errands outside of the
home manageable. They let you go places without
having to depend on others. They can keep you from
falling and prove to your loved ones that you’re far
from helpless.
DEVICE WHAT THEY DO
Leg
braces
An ankle-foot brace can
make the ankle more
stable when leg muscles
that raise the foot are
weakened. The brace fits
into a shoe and keeps the
toes from dragging.
Canes
A cane in helpful for
both leg weakness and
balance. Physical therapy
can ensure that the cane is
being used correctly.
33
DEVICE WHAT THEY DO
Walkers
Walkers give support and
balance for those with a
good deal of leg weakness
or balance issues. Walkers
with wheels can further
aid in getting around.
Wheel-
chairs or
scooters
For the best mobility,
wheelchairs and scooters
offer the most independence.
People with extreme fatigue
or who tend to fall due to
balance issues will find
better mobility with one of
these devices.
Keep in mind that it’s always a good idea to see a physical therapist
to learn the right way to use any of these assistive devices.
SERVICE ANIMALS
Service dogs need a high level of commitment. They aren’t cheap;
they need training, grooming, feeding, picking up after and vet
care. Ask yourself if you have the time and resources to make
this option work for you.
Service dogs can be trained to:
Guide you
Alert you to sounds
Open and close doors for you
Retrieve items for you
Pull your wheelchair
Give you balance support
Turn lights on and off
34
35
WALKING WITH MS
For people with MS, the right shoe can mean the difference
between walking ease and agony. Here’s what you should
look for in your search for the proper footwear:
Lightweight
Heavy shoes take more of your energy and effort to lift
when walking.
A light tread
A lighter tread reduces ground friction, keeping the foot
from dragging.
Secure fastening
Shoes with laces, elastic binding or Velcro fasteners adjust
for a better fit for your foot than slip-on shoes.
A broad base
If the heel is too narrow, the shoe could make you tip. A
wide heel will keep you stable while standing.
Extra depth
Shoes with added-depth are built a bit higher all-around.
They give you support and space for a better fit, as well as
room for orthotics or a brace.
A firm heel
Shoe heels should feel solid, not soft when you press on
them. Loose sling-backs, flip-flops and clogs won’t give you
the support you need.
The right size
A shoe too small can restrict blood flow. One too large can
make your stance unstable. The best fit provides ½ to 1 inch
of toe room while standing, with no heel slippage.
A low heel
Choose a shoe with a heel that’s only 1.5 inches or less, and
no more than 2 inches. This will help with balance. A low
heel also lets your foot roll instead of slap when you walk.
A sturdy shank
Positioned under the sole, the shank is made of steel or
plastic. It runs from the heel of the shoe to forefoot and cuts
down on side-to-side foot motion.
FIND OUT MORE
Multiple Sclerosis Association of America:
Mobility and Walking Issues:
mymsaa.org/ms-information/symptoms/mobility/
36
WORKING WITH MS
WORKING WITH MS
MS doesn’t have to slow down your professional life. With
some changes at your place of work and with the right advice
from job counselors, you can keep on working.
If you’re looking for a job that matches your skills, keep in
mind that state government agencies and some health care
facilities offer job placement services. They can help find the
right job for you or help you keep the job you’ve got. They
may have tests to help you assess your interests, strong points
and limits.
JOB REHAB
A job rehab program can help you:
Identify your talents and abilities
Research career interests
List job preferences
Come up with job goals
Get in touch with a job rehabilitation counselor. He or she will
guide you through the process as you research jobs and decide
on what to do. A job rehab counselor can also help you update
your résumé and brush up on interviewing skills.
37
MS BY THE NUMBERS
MS BY THE NUMBERS
43
43
Percentage of adults who have had MS
for at least 12 years who are able to
keep their job, according to the
National Multiple Sclerosis Society.
STAYING SAFE AT YOUR WORKPLACE
Another role of the job rehab counselor is to watch you perform
your work tasks to make sure you can do them safely. This
person can recommend changing your job duties or having the
workplace make safety improvements to help you.
Your rights are protected by Americans with Disabilities Act.
Employers need to make “reasonable accommodations” for
any disabilities your MS causes you. This means your place of
work must make changes to the way your job is done or to the
equipment you use in doing your job.
JOB COACHING
Some community agencies offer job coaching for people with
severe disabilities. A job coach works with you to set up your
job duties based on your strengths and limits. In this way you
can get help on the job to learn procedures and tasks, while
meeting your company’s expectations they have for you.
FIND OUT MORE
National MS Society:
Employment:
nationalmssociety.org/Resources-Support/Employment
38
MS AND PREGNANCY
Most doctors believe that getting pregnant is safe for
women with MS. Research shows there’s no greater risk
of complications during pregnancy. Many women even
have fewer MS symptoms during that time. Doctors
think the high levels of hormones and proteins may
subdue the immune system. The result is less of a chance
for new attacks.
Talk with your doctors before getting pregnant. Some
MS medications have the possible risk of harm to the
fetus. Almost all MS drugs are not typically taken while
trying to become pregnant, during pregnancy or while
nursing.
In the months after delivery, the chances for an MS
relapse can go up. If you desire to breastfeed your
newborn, discuss the pros and cons of holding off on
starting disease-modifying treatment after you deliver.
FIND OUT MORE
National Multiple Sclerosis Society:
Pregnancy
nationalmssociety.org/Living-Well-with-MS
39
DEPRESSION
AND MS
BEYOND BLUE
Depression is one of the most common symptoms of MS.
The condition can range from feeling sad for a short time to
serious clinical depression lasting months or longer. Studies
have shown that clinical depression happens more often for
people with MS than it does in the general population or
with most other chronic diseases.
You can’t control depression. It’s not an indication of
weakness. It doesn’t mean you’re less of a person. When it
happens, it calls for the same consideration and treatment
as any other MS symptom. Ignore it and it can make your
quality of life worse, as well as your other MS symptoms.
MS BY THE NUMBERS
MS BY THE NUMBERS
7.5
7.5
Percentage over the general
population that a person with
MS is more likely to commit
suicide, according to a study.
40
Experts don’t fully know the extent of MS and depression.
They’ve learned that there are many factors that can add to
its likelihood:
A reaction to stress and difficult life situations. Those
with MS run a higher risk of depression after being
diagnosed, during a flare-up or when the disease gets
in the way of regular daily functions.
As a result of the MS disease process itself. MS can
harm areas of the brain that deal with emotional control.
Depression can result, due to these emotional changes.
As a result of changes in the immune system. Mood
changes often go along with immune changes for
people with MS.
As a side effect to some medications. Some meds
prescribed to treat MS attacks may worsen or trigger
depression.
WARNING!
If you’re having thoughts about hurting yourself or
someone else, call the National Crisis Hotline at 1-800-
273-TALK (8255) or text “ANSWER” to 839863.
41
Symptoms of MS-caused depression:
Feeling sad or irritable
Loss of energy
No interest or pleasure in everyday activities
Feeling guilty, hopeless or worthless
Loss of appetite or increase in appetite
Sleep troubles—either insomnia or sleeping too much
Fatigue
Crying
Difficulty in making decisions
Aches and pains you can’t explain
Headaches
Stomachaches and problems digesting
Problems with thinking or concentrating
Sexual problems, no sex drive
Lasting thoughts of death or suicide
TREATING DEPRESSION
Oftentimes psychotherapy and/or antidepressant medications are
needed to best treat depression. Support groups and the care
and concern of family and friends can help with milder forms of
depression, but professional therapy and meds are best for treating
severe clinical depression.
There are many antidepressant drugs available. These must be used
under your doctor’s supervision. Because these drugs vary in how
they work, you may have to try different ones or doses until you
find the combination that works best for you. Talk to your doctor
about a depression treatment plan.
FIND OUT MORE
WebMD:
Multiple Sclerosis and Suicide
webmd.com/multiple-sclerosis/guide/ms-depression
42
YOU’RE NOT ALONE
CELEBRITIES WITH MS
YOU’RE NOT ALONE
CELEBRITIES WITH MS
These people are proof that having MS doesn't have
to slow you down from following your dreams.
Montel Williams Talk-show host
Annette Funicello Actress
Ann Romney Wife of presidential
nominee Mitt Romney
Donna Fargo Country singer
Neil Cavuto Fox News Channel host
Clay Walker Country singer
Teri Garr Actress
Tamia Hill Singer-songwriter
David Lander Actor
Hal Ketchum Country singer
FIND OUT MORE
WebMD:
Famous Faces of Multiple Sclerosis:
webmd.com/multiple-sclerosis/ms-treatment-13/
slideshow-faces-of-ms
43
THE FUTURE OF MS
THE FUTURE OF MS
THE OUTLOOK
Due to recent advancements in treating MS, most
patients can live fairly normal lives. While the
condition may make it harder to get around or
perform certain tasks, it doesn’t lead to severe
disability every time. Thanks to proven medications,
rehab therapies and assistive devices, many people
with MS stay active, keep their jobs and continue to
live their lives.
In the last 20 years, options for those dealing with
the disease have greatly increased. New medications
are being developed, approved and used to treat MS
with great success. At present, new drugs are being
researched that aid in renewing the myelin lost due
to MS. New stem cell therapies are also undergoing
research that could lead to big breakthroughs soon.
The cause and cure for MS are still not known. The
best way to fight the disease is to keep it from getting
worse. This is sometimes easier said than done. But
research continues to produce more treatments that
work. The goal is to one day find a permanent cure.
Clinical trials of new drugs and therapies have proven
to be successful. If you’re interested in taking part in
clinical trials, talk to your doctor. It may greatly help
you and others.
QUESTIONS FOR MY DOCTORS AND
HEALTH CARE TEAM
QUESTIONS FOR MY DOCTORS AND
HEALTH CARE TEAM
44
QUESTIONS FOR MY DOCTORS AND
HEALTH CARE TEAM
QUESTIONS FOR MY DOCTORS AND
HEALTH CARE TEAM
45
MY NOTES
46
MY NOTES
47
MY NOTES
48
RESOURCES
RESOURCES
National Multiple Sclerosis Society
nationalmssociety.org
1 (800) 344-4867
Multiple Sclerosis Association of America
mymsaa.org
AbleData: Assistive Devices
abledata.com
Disability Resources
disabilityresource.org
National Rehabilitation Information Center
naric.com
Assistance Dogs International
assistancedogsinternational.org
Centers for Medicare and Medicaid Services
medicare.gov
(410) 786-3000
National Alliance for Caregiving
caregiving.org
(301) 718-8444
© 2017 Centene Corporation. All rights reserved. All materials
are exclusively owned by Centene Corporation and are protected
by United States and international copyright law. No part of this
publication may be reproduced, distributed, displayed, stored in
a retrieval system, or transmitted in any form or by any means,
electronic, mechanical, photocopying, recording, or otherwise,
without the prior written permission of Centene Corporation. You
may not alter or remove any trademark, copyright or other notice.
MCARE17-00029E
MS
MS
There’s no doubt that a
diagnosis of multiple sclerosis
is a life-changing event. This
booklet can guide you through
the basics for coping with MS
and its many challenges.
Diagnosis and
definitions
Symptoms
Your health team
Treatment plans
Healthy foods
Fitness
Staying mobile
Working
Pregnancy and MS
Depression
And more
MADE IN
THE U.S.A.
Because Where’s It
@? Media cares
about the environment, this book
was printed on recycled paper.
Created by MICHELLE BAIN
Design by SAM WASHBURN
ISBN: 978-0-9916168-7-9
Download
Save PDF to desktop
Email
Email completed PDF
Send for Signing
Email for others to sign
Print
Print document
Choose a Field
Click on a field and
select the person that should complete it
Want to add a signature?
You can add a signature field
and assign it to someone else
to sign
Choose a Field
Click on a field and
select the person that should complete it

Taking Care Of Your Multiple Sclerosis (Superior HealthPlan)

This document is locked as it has been sent for signing.

You have successfully completed this document.

Other parties need to complete fields in the document. You will recieve an email notification when the document has been completed by all parties.

This document has been signed by all parties.

Completed 22 February 2021

Message

View Audit Log
Print With Audit Log
Duplicate Document